sdsregistry.org

Shwachman-Diamond Syndrome Registry Promoting science and discovery.

Promoting science and discovery. You make it possible. What is the SDS Registry SDSR? Participating in the SDS Registry. Welcome to the Shwachman-Diamond Syndrome Registry. What is Shwachman-Diamond Syndrome? Shwachman-Diamond Syndrome SDS is an inherited condition typically characterized by low blood counts and digestive problems. Many patients have additional symptoms such as problems with growth, bone abnormalities, and frequent infections. About the SDS Registry. What is the SDS Registry SDSR?
history traffic contact

OVERVIEW

The site sdsregistry.org currently has an average traffic classification of zero (the lower the more traffic). We have downloaded seven pages within the site sdsregistry.org and found five websites associating themselves with sdsregistry.org. There is two contacts and directions for sdsregistry.org to help you communicate with them. The site sdsregistry.org has been on the internet for eight hundred and thirty-five weeks, four days, seven hours, and seven minutes.
Pages Parsed
7
Links to this site
5
Contacts
2
Addresses
2
Online Since
Jul 2008

SDSREGISTRY.ORG TRAFFIC

The site sdsregistry.org has seen alternating quantities of traffic all through the year.
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SDSREGISTRY.ORG HISTORY

The site sdsregistry.org was created on July 02, 2008. As of today, it is eight hundred and thirty-five weeks, four days, seven hours, and seven minutes young.
REGISTERED
July
2008

AGE

16
YEARS
0
MONTHS
4
DAYS

LINKS TO SDSREGISTRY.ORG

Shwachman-Diamond Syndrome

Saturday, November 9, 2013. As of 2013, each of my boys has had over 25 BMBs each.

Shwachman Diamond Project

The Shwachman Diamond Project - Supporting research into treatments and a potential cure for Shwachman Diamond Syndrome. At the Fred Hutchinson Cancer Research Center. For interest in obtaining funding for research, please review our simplified Grant Request. In Seattle, Washington, and Cincinnati Child.

WHAT DOES SDSREGISTRY.ORG LOOK LIKE?

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CONTACTS

Fred Hutchinson Cancer Research Center

Paul Litwin

1100 Fairview Ave N

Seattle, Washington, 98109

US

1.2066673426
plitwin@fhcrc.org

11 Internet Inc.

Hostmaster ONEANDONE

701 Lee Rd

Chesterbrook, Pennsylvania, 19087

US

1.8774612631
hostmaster@1and1.com

SDSREGISTRY.ORG SERVER

We detected that a single root page on sdsregistry.org took one thousand three hundred and seventy-five milliseconds to load. I could not detect a SSL certificate, so therefore our crawlers consider this site not secure.
Load time
1.375 sec
SSL
NOT SECURE
IP
50.87.150.161

NAME SERVERS

ns741.hostgator.com
ns742.hostgator.com

SERVER SOFTWARE

We detected that this website is utilizing the nginx/1.8.0 os.

SITE TITLE

Shwachman-Diamond Syndrome Registry Promoting science and discovery.

DESCRIPTION

Promoting science and discovery. You make it possible. What is the SDS Registry SDSR? Participating in the SDS Registry. Welcome to the Shwachman-Diamond Syndrome Registry. What is Shwachman-Diamond Syndrome? Shwachman-Diamond Syndrome SDS is an inherited condition typically characterized by low blood counts and digestive problems. Many patients have additional symptoms such as problems with growth, bone abnormalities, and frequent infections. About the SDS Registry. What is the SDS Registry SDSR?

PARSED CONTENT

The site sdsregistry.org has the following in the web site, "What is the SDS Registry SDSR? Participating in the SDS Registry." I noticed that the website also stated " Welcome to the Shwachman-Diamond Syndrome Registry." They also stated " What is Shwachman-Diamond Syndrome? Shwachman-Diamond Syndrome SDS is an inherited condition typically characterized by low blood counts and digestive problems. Many patients have additional symptoms such as problems with growth, bone abnormalities, and frequent infections. What is the SDS Registry SDSR?."

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